An exploratory study using phenomenological theoretical perspective to understand healthy volunteers’ lived experience of drug trials. MSCPR 2011
The conduct of phase I research using clinical trials is determined by the ability to recruit
healthy volunteers to these studies and retain them on the data bases for future research,
this highlights the importance of enhancing volunteers’ experiences of trials.
This dissertation attempts to explore and understand people’s experiences of being a study subject. Using the existential phenomenology of Merleau-Ponty (1945/1962), a philosophy and a method
developed to embrace human activities (Howard, 1997), the study explores the ways things
appear to a group of healthy volunteers while on a trial by returning to the very thing presented by them in a one to one dialog.
Data obtained was subjected to the phenomenological analysis cycle eliciting the essences of experiences hidden in multiple layers of meanings present in shared stories and anecdotes.
By providing a rich description of lived experiences grouped within the phenomenological categories of the feeling of time,space, others and self, this dissertation uncovers alternative understandings of the experiences of drug trials related to living in a group of people in a confined environment.
Due to this outcome, apart from describing the drug trials volunteers perceptions, the study
draws parallels to NASA psychological research of groups in isolated, confined and
artificially engineered environments such as weather stations, submarines and polar
outposts. These studies referring to analogous situations of isolation provide an additional
perspective to the overall understanding of the volunteers’ lived world. Additionally, this
dissertation challenges the view present across literature that volunteers need high quality
information which impacts on their experiences of trials and instead highlights the
importance of human factors affecting these experiences; such as the need for a bigger
space while on the study, the need of privacy and entertainment and the considerable role
others play in a trial participation experience.
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Last modified Tuesday July 12 2011 at 15:05
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